Aneyah went for a follow up on her scoliosis. She goes every 4 months so her curve can be watched. Sadly, she has not improved! Good news is she is not worse but it has not improved in the last four months. So, the Doctor tightened her brace and she now not only has to wear it every night, as in the past, but she now has to wear it two hours during the day. She is not fond of the brace at all.
With our schedule, it will work best to put it on after dinner. Now keep in mind that Aneyah has a very large throat that goes down to a small hole into the stomach as well as a repaired diaphragmatic hernia as well as a small hiatal hernia. Well, I waited about 20 minutes after dinner this evening to put the brace on. I barely turned my back, and due to the tightness on her stomach, Aneyah brought all her dinner back up. Because it takes a while for her food to get into her stomach, she brought up basically a chewed meal that was not digested at all because it had not made it into her stomach yet. Poor thing! I felt so bad for her. So, I am now going to have to get creative with the brace time based upon when we get home and dinner to get in those two extra hours. It will be a challenge because she needs to eat and keep her food in but she always needs the extra two hours of brace time. If you have a minute, please say a prayer for us. We would so appreciate it!
4 comments:
Oh, what a challenge! I'll keep Aneyah in my prayers.
For you we've always got more than a minute - and will gladly keep you in our prayers! I wish I had a scheulde suggestion for you - sorry - but yeah, it IS hard to be a parent sometimes!
hugs - aus and co.
I am so sorry to hear that Aneyah is having a difficult time with the added brace time. Does it have to be two consecutive hours?
Not sure if that would even help.
Hugs and Prayers!
Sweet Aneyah is in our prayers without a doubt! poor girl. We'll be thinking about all of you! :)
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